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Showing posts with label E coli. Show all posts
Showing posts with label E coli. Show all posts

Friday, September 24, 2010

Blog Carnival...at TherExtras: Seeing and Hearing Angels

Barbara, at TherExtras is hosting a blog carnival: Seeing and Hearing Angels

This was her directive..
Please post about the place of music in the life of your child. And then enter your post in my
Third Annual

Angelic Blog Carnival
 
Ah, music and angels... such a HUGE thing in this household.  I knew when my Jessica came early at 33 1/3 weeks that Angels were at hand-- I knew that Angels had placed two nurses named Jessica, and also the Dr. named Jessica-- I knew it was a sign to call  her Jessica.
When she was young, a mentor Grandma Phyllis's-- told me to play certain music when she napped-- so that she would have a cue, play the music take a nap. Grandma Phylis's was gone from our lives too soon-- she was a force of nature while here on Earth and now that she is gone on to be an Angel--  I miss her much-- but I also know that she is still with me-- I hear her voice in my head telling me what is a good choice and what is a bad choice, when I hear about dear friends' dealing with the pain from fibromylagia I think of Phy... When I see ladies... of a certain age wearing Red Hats with purple flowers I think of Phy... 
 When I see fudge, I think of Phy... she was adopted by a family and one of the last names that she had... was FUDGE...Phy... LOVED chocolate! 
So... yep-- I got some angels who are with us often.
Music...
My dear husband is the singer in the family-- the kids and I enjoy music, but we aren't "good" singers--
I love to use music to lift, or brighten my mood,-- I think music has the ability to change your emotions, to change your perspective. I think music can heal,comfort and also energize.
We use our Ipod with Shane to keep him calm and focused when we need him to stay still...
Because I have a ton of eclectic music on the Ipod-- sometimes Shane isn't very... well calm when he listens to the music-- but he is focused...
One of these days I need to take a short video of him "jammin" to music from my ipod and then see if you can guess the name of the song.
I know that there are songs that will always make me cry-- because of the emotions that they evoke...
When Jessica was on her way to Doernbechers right after birth--
I heard the song by Lonestar  I'm already there--
I knew that Angels and Music were at hand...
 I was 20 something, when my Grandmother Moore passed away I was at work -- I took the phone call in the break room-- I heard the song Friends are Friends forever, by Michael W Smith. and it brings tears to my eyes and I stop and feel that emotion-- I miss her but I also know that when I hear that song... it's her way of letting me know that she is still here with me... perhaps as an Angel?
Music... ah.. I was embarrassed and yet pleased...
 While at an IEP meeting for Shane...
 the staff and I were talking about the music
 that he likes best on my ipod... it wasn't the music I would of chosen-(Queen, 4nonblondes)
- but It was kinda a treat to see that my son did have his own taste in music.
When my daughter was sick with E coli -- I was very pregnant with Shane-- I needed something to help keep me focused on the positive-- my sister in law Danni... brought me a CD of Dave Irish(sorry I can't find a link for this artist)  from her home-- I still have that CD, and now it's on my ipod... Shane was so excited to tell me the other day... "Mom, I  think I like a Christian song... (he's not real fond of my music... it's too slow and calming...) "
I honestly believe that the power of music is almost as much as the power of angels...
And when the Angels and Music work together-- Ah, simple priceless Joy! ...

So,there ya go my submission for the blog carnival at TherExtras...http://www.therextras.com/therextras/
Keep those Angels close by playing some music !

Saturday, February 20, 2010

Book review, and Changes to come?

I love to read,and I have already finished reading the book I just received in the mail--
Not Just Spirited by Chynna T Laird
 I experienced tears,smiles,nods of that's happened to us.
As I was reading the book I thought, if I should journal about our story as I read?  There were many things about her book that we also experienced-- she (Chynna) put into words some of the things about SPD that I had yet to admit.  
I thought about my childhood and -- I have to say that looking back I could say that I do myself have sensory issues-- I don't enjoy how velvet feels-- I can't stand the feeling of nylon underwear...I don't like being in large groups, the amount of light in an environment can make me either happy or frustrated. I know I have food issues, :)-- .  I already know that Jerry has ADHD, as does my big brother and my Father--. After thinking about all these things, I felt some guilt-- and then I tried to let it Go... my prayer as I go forward is that the changes we make are positive and helpful-- that our purpose is to help the kids to be the best..."them" they can be. I know that the best will be different for each of the kids--
Now that I have read the book, I can't figure out who to pass it along to--
 I was thinking of Shane's teacher-- but then -- Chynna's daughter has SPD more acutely than Shane-- and although I enjoyed reading this book-- Shane's teacher may not have the time to read it -- or be interested in the whole book.
The Special Education teachers might really be interested-- but I know that their reading time is at a premium.
I have been reading some new(to me) blogs that have a focus on SPD and learning to make life with an SPD child easier--it's an eye opening experience-- I used to think that I knew a good portion of information about SPD-- but reading Chynna's book and some of the blogs-- I find that I am only just beginning to learn about SPD. 
I am learning that,   if I step up to the plate and do more research-- I might have better results with Shane-- .
Other people like to learn about cooking,or fitness, or gardening-- I want to spend my time learning more about how--- to make life better-- for Shane and our family.

When I started this blog,it was because I would read Michelle's posts at In the Life of a Child,she wrote with such wit and humor -- she wrote about the good and the bad. 
As I read -- I thought how it would be fun for friends and family to read about my kids-- and the funny things they said or did-- I thought that our struggle to deal with the aftermath of Jessica having E coli -- might be informative to others. I really didn't think that Shane having SPD would be such a motivating force. I wanted to post pictures here--so that I didn't have to email  pictures to so many-- I thought that if I had a blog-- it would be like one-stop shopping.
Now, I feel differently-- I have learned so much from writing here-- I have learned that I need to write and then read  and re-read (even edit, or double check my links...) before posting, I have learned that I can help others-- I have learned that others can  help me-- I love reading how other people deal with tough stuff in their lives-- I love getting free stuff -- just by adding my comments! I really love when I get comments on here --
 I like knowing that someone else can laugh and cry, pray and smile at our wacky life.
I am thinking about some changes here-- and I am open to suggestions and comments   jssewingmom@gmail.com or you can leave a comment below --
Thanks
Stacey

Monday, February 1, 2010

I hate it, but I love it~

Because of my kids-- I have learned to be the resource mom.
I hate it -- but I love it...

When Jessica was born I had to learn all about being the mom of a preemie-- I had to learn about how to navigate the medical jargon, I had to learn just how precious the caring staff could be, I had to learn how to follow my Mom's instinct and -- sometimes I had to voice my opinion.
I remember I felt like I had been left off on a deserted island... like the people in LOST.
I kept wishin and hoping that I could have someone to call who had been there-- done that ...
The nurses, staff and the social workers helped--
 but none could really answer my difficult questions--
How long will this last?
Will she be normal?
How am I going to get used to this ..."feeling" ?
And
Why?

Then when we found out about the E coli,  the Dr's kept saying,
 "Well she's a case study of one--- We don't know for sure if her kidney's were ever normal-- and really we don't know if her normal is strong enough." 
So, when Shane was born and his behavior as an infant was not -- even in my experience "typical--"
I felt like I deserved a T-shirt... been there done that... I knew who to call -- or at least I knew what agencies to start by calling.
Other mom's that I met thru my circle of friends would often call me for help
-- I enjoy helping when I can, but this was very weird for me--
I was learning how to just be ...a mom-- and yet I was instead,  this person with information.
I finally decided that I could just go ahead... and give help when I could ~
I still get phone calls -- I need help -- who do I call and how do I ask for what I need.

This weekend the kids and I went down to the school to ..."play" tennis, while we were there Shane-- proceeded to tell another little boy...
 all about his "skateboard shoes, and how his wii is just the best thing EVER...."
I found myself talking to the mom and the next thing I know I am talking about the school and how it's great this year-- I go on and on... about how EEP (the pre-school) is just over there in that building; I talk about how you can call EC Cares and get your child tested -- all of this is a bit much-- now that I think  back I hope I didn't freak out that mom... I am not sure that I sounded like a "sweet" passionate mom...
I may of sounded like highly skilled Mom on a Mission to convert all to MY WAY OF THINKING!

So, I guess I ended up this weekend hating that I knew all this,
STUFF-- and yet Loving it that I knew where to get information--
  • and still I am not done with my search for how best to not to pull my hair out~ 
  • or how to navigate the web to find what I need quickly-- rather than sifting thru a ton of sites...
  •  

So, anyway-- that was our weekend!
Happy Monday...
prayers for HennHouse,Travis and family,Sally Jo in China, and Haiti

Friday, August 21, 2009

time on my knees...

I haven't been blogging much this week-- it's our local county fair...week ~
Fair week brings back bad memories-- Jessica got e coli from a simple trip to the fair.
It makes me sad that I am un-able to see the fair as a GREAT place to be., I find myself yelling sarcastically at the TV, when the news people are at the fair, talking about all the "fun stuff" to do~
I have often thought about going down and walking on the sidewalk with a sign... but then I think what purpose would I serve? maybe I'd be on TV again... but I can't imagine that people would listen any better than they have in the past...
I know that some people are more likely to get e coli.... and Jessica just happened to be at the wrong place at the wrong time, and yet I want an apology-- I want compensation....
But I also know that -- none of what I want... is what God has planned, and so I find myself praying and waiting --
It's not really bad... all this emotion and upheaval... but I am not sure how to move on-- when I see a constant reminder on Jessica's neck (she has scars from her main line...)
I worry that the H1N1 virus will be detrimental for our family, I hope that I can get her the vaccine--
I'm thinking that maybe I just need to do some (more) time on my knees....
If you want to read the whole story about Jessica and her last trip to the fair-- click on one of the labels below... and get your kleenex.

Thursday, May 21, 2009

The Zoo,Alaska,Field Trips, and fish~

Jessica had loads of fun at the zoo~ she also had a really great teacher that helped to remind her to go pee! All those worries ~ and for naught!

She pet a snake,an armadillo,a dead snake skin and a dead beaver skin...(her words...) She got to see the worlds' largest owl, giraffes,she got to see the butts of some baboon's-- and she saw a black scorpion! She had the chance to pet some goats, but she didn't because she knew they had higher rate of E coli...(I love it that Jessica listened to my words of caution and she followed them! yahoooo!)

As I was leaving my house to go and get her, my parents' showed up and wanted to talk about their trip to Alaska on a cruise-- There was 400 or so pictures to see, and gifts to receive.

I am very confident that my family can do a great job of advertising for Alaska~~
from the hats, to the t-shirts, to the socks, to Jessica's backpack, and to many different colored bracelets all saying ALASKA... Shane got a train whistle that he has a hard time using...my kids may be full of things to say, but not full of enough air to get that darn whistle to make any noise-- and ... I'm not annoyed... quiet train whistles make me happy !

When I did finally get Jessica at the school, I don't know if she was happier to be home, or happier that Grandma and Grandpa were at the house!--

My parents tried really hard to convince me that I need to get a bunch of money together-(thousands of dollars)- and then convince some friends to go with me and my husband on a cruise-- I don't wanna... really I would rather save my money for a bigger house-- or something that would help me in my day to day life. (a maid!)



Shane's day went okay... although I got angry with a comment the teacher made -- about an upcoming field trip for him and the other kinders to the same Zoo that Jessica went to. I ended up writing an email to the principal and the teacher and the "professional" (Bruce) -- hopefully that email will bring the results I desire! until then I will try not to dwell on the negative. (as I stamp my foot and then tap it repeatedly to hurry the process along!)



Jerry showed up really late this evening empty handed, apparently there was one fish caught, but I think it went home with his brother. The guide did make a new deal with the guys to do another guided fishing trip with a cut rate price.-- Today, Jerry is fishing for bottom fish at the coast, this time his work is picking up the tab...

I just got an email from the professional(Bruce) and Shane can go on the trip, but we will all have to meet before the trip--- they (the staff) are worried that I can't keep my son safe! Geez...
I don't get why my skills are being held in question!
AGhhhhhhhhhhhhhhhhhhhh


By the WAY --- My sister-in-law (Sara)and my brother(Peter) have been married
now for 4 years and I am very proud of them, and the lovely family they have created!
congrats! yahooooo!

Thursday, April 23, 2009

Today and also prayers needed~

Today ~
Shane got to eat lunch at school with all the other kids-
- (he hasn't gotten to do this since about November)
On his way to the lunchroom -- Shane got a few complements from the school counselor-- immediately after Shane hugged the boy in front of him-- and then Shane was told
"we only hug at home," then Shane got mad and yelled at the teacher-- "you're stupid -- and you're not nice" for yelling at her he got a time out.
Shortly after that he was entering the lunchroom-- he closed the door behind him and then the teacher, physically made Shane re-open the door. Shane was very frustrated and he took a moment to close his eyes, and take a breath-- then he was walked into the lunchroom. (For this moment I am so very proud of him...he controlled himself enough to make a positive change)

There has got to be another way to interact with Shane that solves this behavior issue.
Clearly, Shane should NOT be yelling at his teacher, or hugging in school-- but isn't there another way to re-direct Shane into compliant behavior?

Jessica is sick this evening, and Shane is worried about her-- he wants to feel her forehead and get her water,crackers and a blanket. I think he even wants to stay home tomorrow and help take care of her. (this doesn't seem Autistic to me...}

My sister-in-law {Danni}'s Mother just found out she has breast cancer and since she already is on oxygen, and blood thinners--she also has some mental health issues-- Prayers are needed.

I also connected,via Facebook --with a family who's son is dealing with E coli and HUS -- the same sickness that Jessica went through-- The young boy's name is Dawson, please pray for this child and his family.

I recently re-connected with a friend of mine Jayne, via Facebook--, we got to have along conversation --I haven't talked with her in at least 10 years-- and yet it felt like we had only been apart for a day or two.

I do treasure my friends-- especially the ones that love me for just who I am-- and none of that competition stuff!

What a roller-coaster day ~

Monday, March 16, 2009

Oh, happy day!

Would you like to read something that could brighten your day?



Hop...Skip -- or click on over to the HennHouse



It is soooooo nice to read a lovely poem from a young man with a bright future!



After hearing that there are those of you who will be praying for me-- thank you

and then reading his poem--
and then finding a post just about me...at http://treasuresfromlifesgarden.blogspot.com/

I am feeling confident and hopefull--

Thanks all of you!

Friday, March 13, 2009

first draft of my speech...

This is the first draft of a speech

that I am due to give on Monday night--

- what do you think?


Children’s Miracle Network,
Mr. Wolverine~ Willamette High School
March 16th 2009
Hello, I’m Stacey and this is my daughter Jessica~
Jessica is a 2nd grader at Howard. I also have a son Shane, who is a kinder also at Howard. Their father, my husband, Jerry is at work this evening supervising the making of oatmeal.
I am here tonight to make you cry… and to talk about how CMN has been apart of our lives.
It was a Thursday, when I went to my regular check-up appointment with my OB/GYN -- I was 32 weeks along, the Dr. talked with me about how I was feeling, and if I was craving anything weird-- she asked if I was eating healthy. Then my NOT so favorite part, the blood pressure check, the blood draw-- and also the urine sample. Ewwwww….!
Apparently, I didn’t pass these tests with flying colors- next I had to spend some time on my side in a recliner being calm and still while their was a monitor keeping a close eye on Jessica.
When I finally got back to the exam room I knew something was up when I saw a wheelchair just outside the door.
The Doctor came back to the room with the nurse and explained that I would be immediately admitted to Sacred Heart-- I think the nurse was there just in case I tried to leave!
I remember I had my husbands’ phone and pager with me, I was supposed to get new batteries, I also had to stop my work, and run other essential errands. I did not realize how sick my body was, I was just frustrated that I was being told what to do and that I didn’t have a choice in the matter. There were so many things that needed to get done and yet I was being told to lay down and be calm and still--- what a challenge that was!

I spent a LONG week in the hospital trying to stay in bed and keep my blood pressure down-- I was on the phone, asking friends to bring me PJ’s, fun healthy food, and things to do-- I even spent some time coloring a coloring book!
Can you say Boring?
The nurses would take my blood, they monitored my urine, they took my blood pressure-- they even gave me shots in my hip-- that really HURT-- to help Jessica’s lungs get stronger. I decided to not let my frustration show-- I often responded to requests for bodily fluids and other tests with “goody goody gumdrops”
~( I am a firm believer in the phrase, never let them see you sweat!)
It was Saturday morning when the Dr came to say, that I was going to give birth, and that I should make the phone calls quick -- but that today was the day my daughter was to be born.
Jessica was born early-- at 33 1/3 weeks old she was only 3 pounds 4 ounces, and she was 17inches long. Her birthday, was the Saturday before our first Mother’s Day. I had toxemia -- which means that my blood pressure was increasing the longer Jessica was in my body. By inducing labor, the Doctors were hoping that I would get back to normal blood pressures-- and that Jessica would be healthy enough outside of me. Jessica was born after a 3 minute long emergency C-section.
There were some complications after Jessica was born, for both of us--she had to be resuscitated, and she also received a blood transfusion soon after she was born. I was under so many medications, the first time I got to see Jessica in person, she was already 2 days old. Jessica smiled first for the NICU nurses, her first bath, was given by a NICU nurse. For about a week Jessica was only known as Baby Girl Harris, I was too foggy from all the drugs to make any life long decisions.
Jessica must have been about 3 or 4 days old, my husband stopped by to visit, and refused to leave my room, until we had given our daughter a name. There was talk among the nursing staff that Jessica would have to be transferred to Dornbechers in Portland.-- After much prompting by my husband -- we decided that we would name our daughter Jessica, later we realized that there were 3 different Jessica’s who helped us at the very beginning of her young life-- The Doctor, my nurse and one of the nurses in the NICU -- were all named Jessica.
The rumors we had heard were true and we found out that I was being released, but that Jessica would be taken via NICU ambulance to Dornbechers’… There was concern that Jessica might have to have kidney dialysis-- .We knew then that this was serious and that it wasn’t going to be an easy ride. On the way to Portland, we stopped to eat at a KFC, I was craving mashed potatoes-- as I sat down to eat I started crying~ the restaurant was full of construction workers and you could tell that they all wanted to know what my husband had said to make me cry… It wasn’t what he had said, it was the song that I had heard --”I’m already there” by Lone star --
I couldn’t help but think that we were missing out on yet another of Jessica’s firsts’ ~ her first trip to Portland. I happen to have family that live in Milwaukie --they were so helpful they let us stay in their house-- although most of our time was spent at the hospital just praying and hoping that she would not have to go thru dialysis. When the Doctors came by one evening they told us that they had ordered the extra small catheter -- from a Seattle hospital and if Jessica’s numbers didn’t get better they would have to give my baby dialysis at less than a month old! There were many people who we had never met that were praying for all of us, God happened to be listening and Jessica ended up not having to go thru dialysis.
So, after about a week in Portland, we were sent back to Sacred Heart here in Eugene. The doctors told us, that we just needed Jessica to grow, gain weight and learn how to eat, regulate her body temperature and to breathe while sleeping.
We spent a month or so in limbo-- I would go every morning to visit and attempt to feed Jessica, I would rock her in a chair, while repeating suck, swallow, breathe.
(As funny as that sounds now, it was crucial for Jessica to develop these skills.)
While rocking Jessica, I was always trying to stay focused on good, when I saw a plaque on one of the incubators that said donated by CMN-- I asked what was CMN. Shortly -- after that a social worker came and talked with me -- she asked if I would be willing to go down stairs and talk on TV for the telethon. I think back now and I don’t understand why I said yes, but I did-- and just a few weeks after giving birth, I found myself on television with a picture of my daughter trying not to cry.
After a few ups and downs Jessica was gaining weight, ounce by ounce ~ the rule then was 5 pounds and or by the babies’ original due date. Jessica’s due date was June 23rd… Sadly, the day we brought Jessica home from the hospital was the same day that we had a memorial service for my Grandfather-- he had Alzheimer’s and so he knew that she was born, but he wasn’t able to ever hold her.
If our story ended here, that would still be a good story--don’t you think?
But -- our story continues~
What were you doing the summer of 2002 -- do you remember?
In August I was 8 months pregnant with my son, Shane and I was craving an Elephant Ear-- I had to beg and convince my husband to go to the fair. He was concerned, that since Jessica was only 15 months old and had only just gotten good at walking ~ the fair would be scary. I reassured him, we will be extra cautious-- I will bring extra clothes and wipes-- just in case. And we were careful~ but I am here to share with you this-- You can wash your hands, you can be careful-- and you still can potentially get E coli. It only takes a small amount -- for Jessica it only took just the size of a dime.
We found out later that you can ingest the E coli --just like you do with dust. It wasn’t the day we went to the fair that Jessica started to show sickness-- it was a few days later. She was puking and had diarrhea -- she didn’t want to smile or even to complain. We had to go to a funeral for a family member, Jessica just seemed to get worse, I called and got in as the last appointment of the day. As the doctor was looking Jessica over and asking me questions -- it was like she knew the answers already. The Dr went and got a colleague to confirm what she thought she was seeing, they both stepped into the room and then Jessica projectile puked all over the room-- the Dr’s just looked at each other and nodded. Our Dr came back in to the room and explained that she wasn’t able to confirm-- but that she believed that Jessica had E coli. apparently we were not the first case of that day. The Dr asked me if I thought I could take her home and take care of her-- or would I rather admit Jessica to Sacred Heart. I was so scared at that moment, I remember taking a moment to ask God for guidance and then saying, yes let’s admit her. I called my husband and asked that he come with me to the hospital-- I figured that I would not be a safe driver with my tears and Jessica so sick in the car. When we walked in to the hospital it was like we were on a red carpet just for us-- but this wasn’t a red carpet I wanted to be on. We walked through the double door of the pediatric intensive care unit, and I was surprised to see familiar faces.-- I recognized nurses from our last stay at Sacred Heart-- I also saw a customer from my work-- that’s when I started to realize that we weren’t the only one and that this could be really huge. We stayed in Sacred Heart for about a week and then -- the Dr’s came to tell me that we needed to go to Portland again. I was upset and unwilling to admit that Jessica was that sick, so I threw a hissy fit… and asked to talk with my regular pediatrician-- the staff got my Dr on the phone and I remember her words to me, “Just go to Portland and keep me posted.”
Because I was pregnant with my son and the staff knew about how Jessica had come early-- they were somewhat reluctant to have me in the ambulance all the way to PDX~ I convinced them that I would be “good” and not get upset and stress Jessica. I don’t remember much of that trip, I do remember how happy I was to be out of the ambulance and able to move. The nurses realized I was very pregnant and immediately they made me lie down with my feet up.--- The nurse was rather stern with me-- explaining that she only wanted ONE patient -- I was to be calm and not go into labor anytime soon. At the Dornbechers rooms, they have a little window bed, and so Jessica and I moved in. We were in PDX for about a month, I spent my 32nd birthday at my daughters’ bedside, I learned things about E coli and dialysis that I would rather not know. I learned about the tests that they took and which numbers should be higher and which numbers should be smaller. I learned that sometimes the simple act of a stranger praying for you can feel like magic. Sharing our story isn’t easy, but I do it to give back-- Please, know that what you do as a community has value and substance. Know that when you give your time or money-- you help more than just the kids, you help families-- and you help to make this world just a little more friendly.
Thank you for listening and crying with me!

Friday, February 6, 2009

Current News Topics~

As a rule, I try to use this blog

  • to figure things out,
  • to share about my kids and
  • to connect with others' that may I may learn from
    I try to stay out of the politics and drama that seem to be on the evening news every night-- however this post -- well it's different~

Salmonella ---

just typing that word gives me chills-- I remember when I was little and our dog got salmonella-- I was so scared that we would loose our pet.
As I sit here and type this, I listen to the evening news talk about the peanut company that sent out products contimanted with salmonella ~" FDA investigators found that the company discovered salmonella in its Blakely plant on 12 occasions in 2007 and 2008. The private lab that tested the products was not required by law to inform federal officials. "

As with most food born illenesses the very old and the very young are at risk-
It just breaks my heart that anyone... has to go though this--- My daughter went through E coli when she was a year and half old --- and she STILL has the effects of it. (no food born illness is pretty, and even after the initial sickness is gone there are left-over effects)
Jessica still has one kidney that is just a bit bigger than the other, and so every evening she takes a pill to keep her blood pressure "normal" --
Why.... why ... do we have so "much" and yet we are still at risk because the goverment doesn't have enough $$ to ..."protect us".
Is it really cheaper, to NOT check up on companies with bad polices, and just deal with the people who get sick?

Are we as a country of American's -- where we give to many,many other countries-- when ever we can --- Are we really ... okay with letting our very own get sick and possibly die ?


In the words of Bill Cosby "Come on people!"


Let's value those at risk in our country-- the very young,the very old and the "weak".



thanks for letting me get on my soap box and vent

Thursday, August 28, 2008

Finding Courage Through Sharing

August 28, 2008

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The topic for this month is memories and memory markers. Share about something that trips a memory in your journey with your child or children, or just a memory that is special to you. The memory can be happy, sad, or anything in between. If you don’t have time to write specifically for this prompt, feel free to share a post that matters to you from your archives. I’m looking forward to seeing what you have to share this month…

~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~

Memories~


- http://frogparenting.blogspot.com/2008/08/get-kleenex-post-about-past.html

I spent my birthday at Jessica's bedside with my parents until - they convinced me to got with them to a restaurant and eat some food that wasn't hospital food.

I missed going to the family camp out the year Jessica was sick, I missed celebrating Labor Day at home, but really what I missed out on was ~how these memories will always change my view-- of this time of year.(Jessica and Jerry also missed out on these things,Shane wasn't yet born-- )

It has been quite a few years since Jessica was really sick, and we feel very blessed, but just the other day we went to a local orthodontist to see about Jessica's teeth and the price of braces.~

I noticed a picture on the wall of people that work at this office~

one of them is a another Mom -- who's son, Hunter was also sick with the E coli.

And so I guess my point in all of this is, that my reality has changed, my view of the world is different ~ because of the past, and my desire to change the memories of the past into something positive for the future.

Wednesday, August 6, 2008

Get the kleenex-- a post about the past~

Each year at this time of year, there are a few local events that make my heart ache--
  • The Lane County Fair(This year the same weekend as our camping trip)
  • The Harris Family Reunion
  • The Moore Family Reunion and camping trip(next weekend we are off to Reedsport)
Our family just got finished with the Harris Family Reunion, and although it was so nice to see everyone~ there was some moments that just made the world stop turning for a while.
{Quite a few of the family asked about Jessica's health and her future-- Although were apart of the lawsuit against the Fair --- we received ZERO monies,Zero apologies, and Jessica currently has to take blood pressure medication every day to keep her kidneys working at a normal rate.}
Back in August of 2002, I was about 8 months pregnant with Shane--
I wanted to walk around ~ I was just... a little hot and cranky~
the Lane County Fair was going on, after much complaining and cajoling
I convinced my dear hubby to take us (Jessica,Jerry and I) to the fair--
Since Jessica had already been though enough medical stuff
-(being a premiee,born at 33 1/3 weeks at only 3 pounds 4 ounces)
- we planned ahead not to touch any animals and to only eat from vendors that we had seen in years past. We also thought that by keeping her in the stroller we would be keeping her safe -- she had only just figured out how to walk and we were afraid that she might get squished in the crowds of people. When we ate, we went in the bathroom and washed our hands and then came back and baby wiped them-- thinking that we were being clean and safe.We saw the tables and chairs that were set out and decided that sitting in a grassy area was a better plan.

We found out later that our choices-- may or may not of been helpful at all.
Herein, lies guilt~

About a week after the Fair, we were at a funeral for my husbands cousin- who passed away after a battle with cancer-- she left 2 kids and a husband behind-- I can't remember her age- but it was just too soon for this event to happen, too soon. While we were trying to share our loss with the Harris Family, Jessica's lack of spirit and energy was fading fast. She had not had anything to eat, and wasn't really even interested in drinking juice.We had made an appointment to see our pediatrician at 4pmish-- I left Jerry with his family and I took Jessica to see our pediatrician.
Our visit seemed to be the longest ever-- Our Dr. looked Jessica over and asked questions-- where had we been recently, what had we been doing--
I didn't know where all the questions were leading -- just that I didn't like the look on our Dr's face. Our Dr. wanted to give Jessica some Pedalite to see if she could keep that down-- the next thing I know she was projectile puking-- (pardon the description) Our Dr. went and got another pediatrician for a consult -- the look on his face wasn't helpful-- his eyes never really met mine-- and I don't think he even said a word out loud-- he just looked at our Dr. and nodded. Once again our Dr. left the room-- I was in-limbo, my daughter had such a cloud of sickness of her and I was just embarrassed about her puking in the office~ shock and dismay seemed to be the only feelings I can remember.
I don't know how much time had passed -- but I know that the office got very quiet and it seemed as though I was the only patient left.
Our Dr. came in and explained that she thought, along with the other Dr. that Jessica was part of a group of kids that were VERY sick-- she was very sad to say that she thought the sickness was,
E coli. -- She asked if I wanted to go home with Jessica and see if I could nurse her back to health--- She explained that I would have to watch Jessica very closely -- I stopped to ask, just how bad can this get? I don't remember the words that she said, just that the end result could be death. I told her that I was very nervous-- How could I take Jessica home and help her~ if she couldn't even keep the Pedalite down? Our Dr. then said, well Jessica is very dehydrated-- let's go ahead and admit her to the hospital and see if they can help her-- .
She left to make the necessary calls and I called Jerry--- who was still with his family-- Through my tears, I explained that I needed him NOW to come and drive Jessica and I to the hospital. (There was no way I was going to be a safe driver with my daughter sick in the back seat.)
When we got to the hospital, we were fast-tracked to the PICU-- On our way in the double doors,
I saw another Mom that I knew, (she was a customer of mine while I worked at Dari Mart)
the tears welled up in my eyes and I just reached out for a hug-- I asked why are you here, and she said, my son Hunter is sick-- we think he got sick with E coli.

As, I type this -- my face is blotchy and red, I think I have emptied all my tear ducks--- So, I am going to pause --

I hope that by reading this,
people will be aware that E Coli is a terrible thing
-- and that hand washing is VERY important--
but that there are MANY other things that can help...to prevent E coli.
  • keep the animals and the food vendors separate
  • test the animals prior to the fair (Yes, most cud-chewing animals have E coli present, but this test is for E coli serotype O157:H7 which is what affects humans)
  • Have the animals a week or two after the Fair-- not at the same time
  • Know that E coli can be airborne
  • Know that even if you are very cautious, the amount of E coli needed to get sick is very small-- our Dr's said that Jessica might of only ingested the amount the size of a dime.
  • E coli affects the very old and very young-- mainly the fragile.
Please, as we enjoy the Summer-- be cautious of Fairs.

Sunday, December 9, 2007

The Generous December Group Writing Project

I was surfing the web and I came across this blog http://www.babylune.com/
--- that has a Group writing project, the following is what I came up with--- hope you like it!
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The Generous December Group Writing Project

This December, I am combining my charitable campaign with a group writing project.
On your own blog, write a new post about your favorite charity, social cause or helpful organization.
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When my daughter was born early, she was only 3 pounds 4 ounces, they tell me she wasn't really alive when she was born, they had to get her breathing, give her blood, and get her temperature to be..."normal"-- Because of all the stress on her system, her organs started to shut down, the main worry was her kidneys~


Because of the children's Miracle Network and all the donations, my daughter had medical equipment that was just her size-- During the week she was at our local NICU, we thought that she might need to have kidney dialysis at a week old-- For this procedure, the patient has a specialized plastic tube placed between an artery and a vein in the arm or leg (called a "gortex graft").-I think that the funds for this specialized and super small tube -- would of been paid for by, CMN!

We were really lucky my daughter never had to have dialysis, but we did see a lot of different equipment at our local hospital with tiny plaques that said, donated by CMN.

Think about this~~ how big around is your big toe?That was about how big around my daughters arm was-- the hospital had super small blood pressure cuffs that could be used on a arm or leg of a very small baby.

Every year CMN has a nationwide telethon, and while my daughter was still in the NICU, we were asked to be on TV, during the telethon to talk about why people need to help, by pledging money~ Although I wasn't in the best emotional state, I said Yes! -- I cried during a good portion of my 2-4 minute interview, but I feel like I got to share just a little of my heart to others, and hopefully I caused them to donate!

My daughter got to go home from the hospital on her original due-date, at 5 pounds, I really thought that we were thru all the tough stuff and our life would just get to ..."normal"


I was so WRONG! --- At about 15months old, my daughter went to a fair, and got sick with E coli, (HUS) -- to make the rest of the story short, we stayed at the hospital for about a month; and did have to go through kidney dialysis--- I even got to sleep next to the machine that does the work of cleaning your blood during the dialysis!
Now Jessica is a happy,skinny, somewhat healthy 6 year old with an interest in anything that can be considered gross-- the insides of worms?
Anyway, I just wanted to say that CMN helped our local hospital be able,
to provide my daughter with all the extra small things that she desperately needed,
each and every time we needed them, they were there!
If you are able, just make that pledge,
the donations that you give stay at your local hospital
You might pass someone on the street today, that got help from CMN !