This is a short video by Rick Dancer -- a great guy who used to report the news, -- he even interviewed me once-- Rick is a great voice for the special needs community~ he understands the fine line between being Politically Correct, and being thoughtless with our words.
There is SO much more to Rick-- pop over to his sites and watch more videos and read his wordshttp://www.facebook.com/l.php?u=http%3A%2F%2Fwww.rickdancer.com%2F&h=7cebf. :)
The kids and I survived yesterday-- it was grocery day and they were both home from school-- although Shane could have done a better job of listening-- there weren't any huge meltdowns -- and I think I got a good majority of the things on my list!
WOW! Color me impressed!
So, Hartley-- over at Hartley's Life with Three Boys is having a blog carnival --
and the Topic : Sensory Processing Disorder
Shane has not yet been called retarded-- and although we do get some looks when we go out-- we have,so far avoided the~ in your face comments. Recently, when I picked Shane up from school -- we had to walk his laptop back to the regular classroom- where all the kids were getting ready to leave the classroom. Shane asked and received permission to hug one of his friends' -- It was bittersweet to see Shane and all the other kids interacting-- he was bumping and crashing-- but the kids were stepping out of the way so that they wouldn't get knocked over. What broke my heart-- was when I tried to get Shane to let go of the hug and walk out of the room.-- Shane wanted to be with all the other kids and just .... "be normal" -- I was trying to explain that we needed to walk out- before the other kids started to fill the hallways.
Corralling Shane when the hallways are full of kids is futile.
Shane just doesn't get the vague social cues of the other kids-- he doesn't realize that although they like him-- he can at times be a little too much. He is getting help with gaining these social skills --but because social issues are so grey-and not black and white- it's a tough topic to help Shane learn.
Oh, how I wish that this part of Sensory Processing Disorder would GO AWAY. --- I can handle dealing with the need for compression, I can handle it when he needs a break, but the hardest thing for my about SPD-- is when Shane realizes that he is not in fact, normal or typical--.
I keep trying to tell Shane (and myself)
he is normal and typical for a kid with SPD.
I guess that my biggest struggle with having a diagnosis of SPD-- is this grey area between normal and not-- Shane can often look typical-- but then when he is near a meltdown- or in need of some sensory input-- that's when he looks different. Different is the part that gives you the lump in your throat that makes it hard to swallow.~ it makes you feel like you haven't done enough parenting with skill-- or like you haven't been aware of Shane's cues for a break-- or for more or less sensory input.
I know that Shane only has SPD...
but -- sometimes I just wanna stomp my foot and say -- HE ONLY HAS SPD....
Then, I stop and breathe-- many other smart,sweet,magical kiddo's have more than just that silly acronym SPD--(they seem to be dealing with all their kids' diagnosis with skill, attention to detail and grace-- look at them-- they aren't-even breaking a sweat!)
Why can't I just manage this? Why can't I just realize this is our normal and get used to it?
Why do I, want normal so badly? Why do I feel the need to compete with what I see?
Lord, I just pray for more GRACE --