Tuesday, June 3, 2008

My Soap box of Discontent post !

Pardon me while I get on my soap-box of discontent~

Yesterday, I had a meeting with our local school district-- to determine if Shane should receive an IEP -or a 504 plan for his kindergarten year next September.
I was very lucky to have his current teacher be available to go with me.

However, I was disappointed to find out that the school district doesn't think Shane is in need~
Both his teacher Laura and I were --not pleased to hear the school districts findings.
They (the school district) came out,to his school-- back in March and tested him, they only saw him just that one time, and they didn't even observe him in the classroom!
Later that day Shane had a really tough time -- he wouldn't eat snack (which is VERY unusual) and getting on the bus was a three person job--- he cried the whole way home! --- But, all this is immaterial according to the school district!

At this point the school district is possibly willing to create a 504 plan for Shane, but only after I get a medical diagnosis-- of ADHD, or Bi-Polar,--- I don't even know if Sensory Issues would qualify.

I found out that I am at the mercy of our neighborhood school principal ! Apparently each school creates it's own guidelines for what language the 504 plan has in it and what would terms or jargon qualify.

I have already put a call into a Developmental Pediatrician--
I just wonder if I should try to take my bright,sweet -- if a touch obnoxious 5 year old to see a psychologist,or a psychiatrist?

I searched on the internet-- and here is some things I found--- I cut and pasted the information below from, http://bipolar.about.com/cs/kids_diag/a/red_flags4.htm

A study conducted by Demitri Papolos, MD, and Janice Papolos indicates that over 80% of children who have Bipolar Disorder come from families with a history of mood disorders and/or alcoholism on both sides of the family. And yet, even when a strong family history of this is present, professionals rarely consider early-onset Bipolar Disorder. Many children who actually have Bipolar Disorder have been diagnosed with ADHD. Why? Because the official guidelines for diagnosing Bipolar Disorder found in the American Psychiatric Association's Diagnostic and Statistical Manual, Fourth Edition (DSM-IV) outline criteria based on classic adult symptoms. When the last edition of the DSM was published, very little was known about how Bipolar Disorder presents itself in children.

Below are some symptoms~

Very Common

  • Separation Anxiety
  • Rages & Explosive Temper Tantrums (lasting up to several hours)
  • Marked Irritability
  • Oppositional Behavior
  • Frequent Mood Swings
  • Distractibility
  • Hyperactivity
  • Impulsivity
  • Restlessness/ Fidgetiness
  • Silliness, Goofiness, Giddiness
  • Racing Thoughts
  • Aggressive Behavior
  • Grandiosity
  • Carbohydrate Cravings
  • Risk-Taking Behaviors
  • Depressed Mood
  • Lethargy
  • Low Self-Esteem
  • Difficulty Getting Up in the Morning
  • Social Anxiety
  • Oversensitivity to Emotional or Environmental Triggers
  • Bed-Wetting (especially in boys)
  • Night Terrors
  • Rapid or Pressured Speech
  • Obsessional Behavior
  • Excessive Daydreaming
  • Compulsive Behavior
  • Motor & Vocal Tics
  • Learning Disabilities
  • Poor Short-Term Memory
  • Lack of Organization
  • Fascination with Gore or Morbid Topics
  • Hypersexuality
  • Manipulative Behavior
  • Bossiness
  • Lying
  • Suicidal Thoughts
  • Destruction of Property
  • Paranoia
  • Hallucinations & Delusions
Less Common
  • Migraine Headaches
  • Bingeing
  • Self-Mutilating Behaviors
  • Cruelty to Animals

As much as I want my son to have behavior support in the classroom -- I don't think that he meets many of these...."symptoms" but then I am not a Doctor--- I happen to be, Just a Mom!


And so I wait, for appointments, and pray that that the diagnosis -
- we receive is enough to help my dear son be a successful student!
edited to add: I got an appointment!!!!! YIPPPPPEEEEEEE!!
however, the appointment is not until July 10th!


Childlife said...

Argh... how frustrating! The principal makes a HUGE difference! Can you apply for a different school, or is it too late for that?

We just got switched to a 504, but I think we're going to be going the homeschool route anyway. I have another meeting with the school on the 19th. Hope things start improving for you!

melody is slurping life said...

Hugs and prayers of hope that he receives the services he needs. Sensory issues alone should qualify. I can't believe a principal can set his own guidelines in the case of children with special needs. I'm confused.

Hope it works out. I understand the frustration of receiving correct dx and fighting for the help your child needs.

jcbce said...

It sounds like you are doing all you can for your son. You are such a great mom, and you know your son better than any psycologist or teacher ever will. I would hate to see Shane diagnosed with Bi-Polor or ADHD; what an incredibly heavy label to place on him. And neither of them are accurate, either. My prayers are with you as you wade through this decision time.